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The Video Clips

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Each of the following clips focuses on a particular aspect of ‘moving on’ for the parents we talked with. The clips build on the issues that they raise or refer to in the film.

Following each clip there are some questions that you may want to think about by yourself or within a group. A set of possible thoughts and comments - shared with us by parents and others can be found at the end of the questions. You might want to see if your thoughts and responses are similar or maybe you thought of something different, personal to you, that we haven't covered. 

If you are running a session using the clips you might wish to use the thoughts and comments provided as a 'back-up' or to further stimulate conversation within the group. 

"A lot of it is guesswork"

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Here Nadine talks about the particular challenges of  involving her daughter in the future planning. 

Discussion point

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  • What are the ways that parents and professionals can gauge the views and feelings of a person with complex disability and health needs? 

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Facilitators

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Asking this question provides an opportunity for parents and family members to share how they 'read' and understand their child's gestures and noises. Listening to each other can validate a parent's knowledge of their child and give ideas for similar things to look out for their in child. 

This 'expertise' needs to be recognised and valued by professionals working with the families - asking about this knowledge can be a useful way to begin a new relationship with a parent and develop trust between you both.

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